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Work Group 3

Page history last edited by Christel Anderson 13 years, 7 months ago

Work Group 3

TIGER Consumer Empowerment & Personal Health Record Collaborative

 

  1. Work Group 3
    1. TIGER Consumer Empowerment & Personal Health Record Collaborative
    2. Working together using this wiki
    3. Activities of Work Group 3
    4. Content Outline
      1. Personal Health Record - Overview
      2. Consumer Empowerment - Overview
    5. Group members
    6. Resources
    7. Upcoming  Conferences
    8. Meetings
    9. Drafts

 

Working together using this wiki

This wiki is a shared online whiteboard that allows the entire group to easily share information to each other and other TIGER collaborative team members. The material on the wiki should be considered to be in draft format and will be published on the TIGER website at www.tigersummit.com upon completion.

 

Activities of Work Group 3

This work group will prepare a current "state of the science" overview on consumer empowerment and personal health records as outlined below.   It is intended that this team's work will use the wiki to develop and post content and be concluded by July 1, 2008.

 

Content Outline

(Note:  We are looking for members to select topics and/or contribute content to these sections.  Please post a brief annotation or explanation with each item anywhere under the outline listed below.)

 

Personal Health Record - Overview

1.  Current state - definitions and standards (use work from WG #1 and WG #2) - David Sweet/Don Mon (standards/AHIMA/CCHIT)

 

type_pdf.gifPersonal health records definitions benefits and strategies for overcoming barriers to adoption.pdf

 

2.  PHR offerings, markets, and suppliers in use today - NLM and AHIMA collaborative - David Sweet

3.  Nurses' role in use/care delivery - WG#4 results (Rita)

  • Adapt AHIMA survey questions for nursing.  (Donna, Rita, Charlotte Ruth,Julie)  Use ANI and member organizations to distribute survey.  Needs to be completed with results by end of July
  • AHIMA survey results.  Executive Summary written by Julie Wolter; 

http://library.ahima.org/xpedio/idcplg?IdcService=GET_HIGHLIGHT_INFO&QueryText=%28Defining+the+Personal+Health+Information+Management+Role%29%3cand%3e%28xPublishSite%3csubstring%3e%60BoK%60%29&SortField=xPubDate&SortOrder=Desc&dDocName=bok1_038473&HighlightType=HtmlHighlight&dWebExtension=hcsp

 

 

4.  Expert sources, web sites, grants, references, major conferences

     Web sites

  •      myPHR.com (AHIMA)

     Conferences

  • Center for Business Innovation (CBI)/California for Telehealth Center - July 7-8,2008 - San Francisco, CA http://www.tcbi.org/hu2008/index.htmltype_pdf.gifHU_2008_Brochure.pdf - Fifth Annual Healthcare Unbound Conference & Exhibition

    A Conference & Exhibition on the Convergence of Consumer & Healthcare Technologies

    Special Focus on Remote Monitoring & Home Telehealth

    for Managing Diseases & Promoting Wellness

     

    Markel Foundation

type_none.gifMarkel - CommonFramework report     http://www.connectingforhealth.org/resources/CCPolicyBrief.pdf        Grants

  • AHRQ
  • RWJF's Project Health Design

      Contracts

  • CMS
  • ONC
    • HISPC Collaborative (contract)

http://privacysecurity.rti.org/ national web site for HISPC; KU's site for consumer education content and tools at: http://www2.kumc.edu/healthinformatics/HISPC/CEEC.htm

 

HIMSS PHR Survey Results

type_pdf.gifCITL_PHR_Report.pdfThe Value of Personal Health Records report examines the value proposition for implementing personal health records (PHRs) thoughout the US.

This analysis quantifies the cost-benefit of a variety of infrastructure, administrative, and clinical PHR functions including:

  • Sharing of complete medication lists
  • Sharing of complete test results
  • Appointment scheduling
  • Medication renewals
  • Pre-encounter questionnaires
  • E-visits
  • Congestive heart failure (CHF) remote monitoring
  • Smoking cessation management

CITL modeled these eight functions for provider-tethered, payer-tethered, third-party, and interoperable PHRs, examining differing deployment strategies to achieving 80 percent adoption by the US population. The report includes a detailed cost model for each type of PHR system.

 

 

5.  Health policy trends - incentives for consumers, providers, etc.

 

type_txt.gifConnecting for Health - News - Press Release.htm 

 

 

(NCQA: Washington) -- The National Committee for Quality Assurance recently launched a new version of its physician practice connections (PPC) program designed to assess how medical practices are functioning as patient-centered medical homes. The new PPC—patient-centered medical home (PPC-PCMH) emphasizes the systematic use of patient-centered, coordinated-care management processes; click on the link below for the full article: http://tinyurl.com/2epd32

 

     A)  CMS role - (Suzie)

     B)  ONC - AHIC and CCHIT (Donna)

     C)  AHRQ (Suzie/Charlotte)

     D)  Proposed legislation

    • Patrick Kennedy - (Ruth W.)
    • Health Record Banking (Suzie)

 

 

Consumer Empowerment - Overview

1.  Consumerism in Healthcare - definitions and standards (use work from WG #1 and WG #2)

2.  Trends in promoting consumer behavior

type_pdf.gifConsumerInternetUse.pdf  recent survey done by CHCF

 

 

type_pdf.gifCHCF 2008 HelpingPatientsPlugIn.pdf  New report from CHCF on consumer use of online tools, including case examples from 5 states

 

type_doc.gifOCR Releases HIPAA Privacy Consumer Brochures in Eight Languages.doc  recent announcement by OCR on consumer education of HIPAA

 

 

3.  Health literacy

  • Definitions for consumerism and health literacy (AHRQ - pharmacy info pkg for consumers, providers, etc. - Susan)
  • Behaviors around consumerism and health literacy

                type_doc.gifUnderstanding Your Caregivers_JCAHO.doc

 

                 https://www.google.com/health/html/about/   Google Health has section of health information data

 

                 http://blogs.patientempowerment.net/?p=24    Patient empowerment blog with information about Kroger memory sticks

 

  • Strategies to improve health literacy for vulnerable populations (e.g., spanish-speaking kiosks - Hahn - Susan)

6.  Programs to address/drive/promote consumerism

7.  Health policy for implementing consumerism

  • States
  • Grant designed to provide better access to vulnerable populations--e.g,. disabled (Ruth - MN St. Scholastica),  Regional; Federal (Linda obtaining information from Susan Daniels on disabled population) type_doc.gifPHR_Policy Expert on Disabilities.doc
  • Enabling legislation
  • Economic models; health insurance - paying for prevention
  •  

Provider-Payer focused

 

 

8.  Models of care that enable consumer empowerment and patient-centered care (e.g. On-Lok; EH Wagner,MD; Bodenheimer-Chronic care model, "Medical Home", Patient-Centered Care Center, etc.) - Nancy Fahey

 

http://content.healthaffairs.org/cgi/content/full/20/6/80#SEC2 – Health Affairs - Consumer-Directed Services At Home: A New Model For Persons With Disabilities

 

http://www.hhs.gov/healthit/ahic/materials/summary/cesum_091207.html American Health Information Community Consumer Empowerment Workgroup

http://www.ura Complete list of winners of the Best Practice in consumer Empowerment and Protection Awards

http://www.ihi.org/IHI.Topics/ChronicConditions/Diabetes/Tools/ChronicCareModelAudiovisualPresentation.htm A 57 minute presentation on Chronic Care Model by Dr. Ed Wagner, Director of Improving Chronic Illness Care national program.

http://improvingchroniccare.org/change/model/modeltalk.html American Academy of Family Physicians (AAFP) access to Chronic Care Model

http://www.medicalhomeinfo.org/Joint%20Statement.pdf  The Patient Centered Medical Home (PC_MH) approach to providing comprehensive primary care for children, youth and adults.

 

http://www.hhs.gov/healthit/documents/ConsumerEmpowerRegMedUseCase.pdf

 

 

http://www.bcbs.com/news/bcbsa/industry-leaders-announce-phr-model.html    Industry Leaders announce personal health record model; collaborate with consumers to speed adoption

 

http://www.vivici.wordpress.com/2007/10/26/a-personal-health-care-record-phr-based-on-international-open-standards-facilitates-true-patient-empowerment  A personal health care record phr based on international open standards true patient empowerment

 

PHRs in Underserved or Underrepresented Communities

California MiVIA™
MiVIA™ was launched in 2003 as a personal health record for migrant and seasonal workers in Sonoma Valley, California. Today MiVIA™ provides an electronic record for several thousand people and their families across the country. https://www.mivia.org/
Click to see MiVIA™ featured in the television series, Healthcare 360: Monitoring American Medicine   https://www.mivia.org/PressMain.aspx
 

 

9.  Information technology enabling consumer empowerment and personal health records (e.g., Microsoft Personal Health Vault integrating device data into PHR - Susan CB; Google/Cleveland Clinic - Rita Z - allow patients to untether their PHR; ubiquitous kiosk stations in libraries, Wal-marts, etc. - Susan)

    *technology strategies to make PHR portable (Google/CC)

 

http://www.mydigitallife.info/2008/02/23/google-in-heath-management-service/

 

Life Record EMR On the iPhone   http://emr.liferecord.com/emr/index.html

 

Emergency Data: MyVitalData     http://www.vitaldatatech.com/sol_myvitaldata.htm

 

Employer Sponsored PHRs (e.g., Wal-Mart; Google; Microsoft, etc.)

http://www.dossia.org/home

http://www.dossia.org/news/useful_links/1472-6947-7-25.pdf

Report cards, other tools

 

 

 

 

 

11. Defining Key Health Information Technology Terms - April 28, 2008

 

http://www.nahit.org/cms/images/docs/hittermsfinalreport_051508.pdf

 

 

 

 

Group members

  • Charlotte Weaver - Lead
  • Nancy Fahey
  • Julie Wolter
  • Ruth Walker
  • Jill Burrington-Brown
  • Linda Dietrich
  • Susan Conaty-Buck
  • David Sweet
  • Rita Zielstorff

 

Resources

type_doc.gifPHR Do they work.doc

type_doc.gifPHR Google launch.doc

http://www.worldprivacyforum.org/pdf/WPF_PHRConsumerAdvisory_02_20_2008fs.pdf 

http://www.deloitte.com/dtt/cda/doc/content/us_chs_ConsumerSurveyExecutiveSummary_200208.pdf 

http://www.chcf.org/documents/chronicdisease/WhoseDataIsItAnywayIB.pdf 

http://edition.cnn.com/2008/HEALTH/02/07/ep.if.i.die/index.html

http://www.connectingforhealth.org/commonframework/docs/T7_consumer_authen.pdf 

http://www.healthdatamanagement.com/news/PHRs25549-1.html?ET=healthdatamanagement:e257:117175a:&st=email

http://www.ahrq.gov/consumer/phrvid.htm 

http://www.healthprivacy.org/files/Best_Practices_Press_Release.pdf

http://www.healthline.com/signin.jsp

http://www.myhealth.va.gov/

Employer Consortium Pushes PHRs 

Microsoft Health vs.Google Health 

Vault  http://www.mydigitallife.info/2008/02/23/google-in-heath-management-service/

http://www.centerforhit.org/x2022.xml    Listing of EHR and PHR

http://cms.clevelandclinic.org/body.cfm?id=227&action=detail&ref=815      Description of partnership between Cleveland Clinic and Google Health

 

 

Upcoming  Conferences

Consumer Health Informatics: An Intensive Learning Experience

April 11 to 13, Claremont, Calif.

 

Meetings

Next Meeting:  

Wednesday, May 28, 2008 at 10 a.m. Eastern

Please register at  https://www1.gotomeeting.com/register/478932088

 

Wednesday, June 11, 2008 at 10 a.m. Eastern

Please register at https://www1.gotomeeting.com/register/441152165

 

Meeting archive: 

Wednesday, April 30, 2008 at 10 a.m. Eastern/9 a.m. Central

Tuesday, May 13, 2008 at 12 noon Eastern/9 a.m. Pacific

 

Drafts

 

 

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